Every year we hear the Christmas story, of Mary and Joseph heading to Bethlehem on a donkey, of the innkeeper, angels and shepherds, the wise men, and of course the baby Jesus; but have you ever looked at this story as a metaphor for additional needs families? Here’s a different look at this well-known story … Continue reading How The Christmas Story Is Like The Story Of An Additional Needs Family
There are 13 million disabled people in the UK, including children and adults, plus all of their friends and family, and the main political parties have been reaching out to them in the run-up to the 2019 General Election on Thursday 12th December. What have each of them been saying, and what does this mean … Continue reading Disability And The General Election 2019
As Noddy Holder of ‘Slade’ yells at us from about the middle of September every year… “It’s Chriiisssttt-mmmaaaaasssss!!!” You either started wearing your Christmas jumper in October, had your decorations up in November and have already watched ‘Elf’ 12 times this season, or like many parents of children with additional needs, you feel like King … Continue reading Seven Ways To Survive Christmas With Our Own ‘Edgar the Dragons’
In FLOAT, a father discovers that his son is different from other kids in the most unusual way. To keep them both safe from judgement, Dad covers him and keeps him out of sight— but when his son’s ability becomes public, Dad must decide whether to run and hide or to accept his son as … Continue reading Why Disney Pixar’s New Animated Short ‘Float’ Is About Autism
By now there is a good chance that you will already have seen the John Lewis/Waitrose Christmas 2019 advert, featuring the adorable Edgar the dragon who struggles to fit in, as well as his friend Ava. I don’t know about you, but as I watched it for the first time, through the tears, it reminded … Continue reading Why Children With Additional Needs Are Like Edgar The Dragon
Every parent wants their child to have friends, good friends that like them and care for them, friends that they can trust and build healthy relationships with. But what about when our child is disabled, different or diverse? A mother from Neptune Beach Florida, USA, spoke about the overwhelming response she has received after Tweeting … Continue reading Would Someone Be Friends With My Autistic Boy?
The heartbreaking abuse of many Autistic children, and children with Intellectual (Learning) Disability or other additional needs, is happening in the mental health system every day. It is one of the greatest fears of every parent that a change of circumstances could see any one of our children suddenly entering this system. Miriam speaks eloquently and passionately for us all… I join her in refusing to accept this abuse of our children and in continuing to campaign for this torture to end…
There are some blogs that tear me apart to write. This is one of them.
Today a government report was published with the title “The detention of young people with learning disabilities and/or autism.” You can read the report in full here: https://publications.parliament.uk/pa/jt201920/jtselect/jtrights/121/121.pdf
I read about it in the press today and cried. My own child has autism and learning disabilities. He’s non verbal, epileptic and he is doubly incontinent. I am not ashamed or embarrassed to say that at times his care needs are extreme and I struggle. Reading the introduction Members of Parliament wrote to their own report was like reading a diary and a glimpse into a future that could so easily happen to my family. Could this be your story?
“Too often the pathway to detention is predictable. It begins from before diagnosis. A family grows worried about their child. They raise concerns with the…
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“It’s just our brains are kinda different, so here’s what we’d like you to know about us…” Some school children with Special Educational Needs (SEN) helped to put a video together to explain a little about themselves, suggesting some ways to understand them better and offering some ways to help them to learn and to … Continue reading What Kids With Special Needs Want To Tell Us And How We Can Help
This week’s blog post is a guest post from Jen Kyriacou, who eloquently tells the story of a recent holiday with her family, including her disabled daughter, Lucy, and offers some helpful, heartfelt and timely guidance for everyone regarding children with disabilities and their families, with eight things we should all understand: So, after a … Continue reading Don’t Be Scared Of My Disabled Child – Guest Post
Who are you... really? Are you just our son, brother, grandson, friend? Are you just a 17-year old young man? Are you just Autistic? Or with Learning Difficulties and Epilepsy? Yes, James, you are all of these things, but are you just what people see you to be? Are you so much more than you … Continue reading Who Are You Really?