I heard an old hymn rearranged in a new way recently, and it deeply touched me. The words so powerful, so amazing, impacted me in a new way. The song had been introduced with the harrowing story of the songwriter, Horatio Spafford, and how against all the odds he was able to write such amazing … Continue reading Parenting A Child With Additional Needs – It Is Well With My Soul
Those of us that care for children and young people with additional/special needs, whether as parents/carers, children’s and youth workers, or in other professional roles, become good at expecting the unexpected, anticipating the unpredictable, and dealing with unsurprising surprises! Life is different, no two days are the same, and we get to ride on a … Continue reading Additional/Special Needs Parents: Worriers Or Warriors?
Additional or special needs parenting is tough, with so much more to cope with than many other families have to deal with. The stresses and strains of parenting a child with additional needs are 24/7 all year every year and added to the anxiety and even guilt that many parents will experience it can all … Continue reading Are Additional/Special Needs Families More Likely To Break Apart?
One of the things about parenting a child or young person with additional needs, is that life is never predictable… Just when you think that everything is going along quite well, out of nowhere something will happen that turns everything upside down and breaks it apart again. That this might happen on a fairly regular … Continue reading Additional Needs Parents: Disrupted, Resilient, Vulnerable, Broken, Loving
This blog by my good friend Miriam Gwynne really touched my heart; I’m sure it will touch yours too so I’m reblogging it. See more of Miriam’s wonderful writing at http://www.faithmummy.wordpress.com
It’s Easter Sunday, the very centre of my beliefs as a Christian, that my Lord and Saviour not only died for me on a cross to carry my sin, but he rose again on the third day to beat death once and for all to enable me (and everyone else who believes) to have eternal life.
I sat in church today and heard the gospel message preached with my beautiful children beside me, just the same as my parents did the generation before. I never tire of hearing the message of Jesus crucified and at 15 it impacted me personally on such a level my life has been rooted and grounded in my faith ever since.
Yet here I am faced with a massive question that has caused me to question my faith in a way I never ever expected: if he wanted tocould my disabled son ever become a…
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We are one year away from the agreed beginning of the Brexit transition period, due to commence on 29th March 2019. As Ben Elton used to say… “Ooh, a little bit of politics there!” so buckle up for my current take on where we’re at with disability and Brexit… On the 23rd June 2016, the … Continue reading Disability and Brexit – What Happens One Year Today?
Epilepsy Awareness Day, or ‘Purple Day’, is on the 26th March, and this will be the first ‘Purple Day’ since James, our 15-year-old son, added Epilepsy to his growing list of conditions that already included Autism and Learning Disability… It’s been quite a year, quite a journey, as we’ve rapidly learned about a condition that … Continue reading Autism, Epilepsy, and the one-in-three chance of ‘Both’
Have you ever played poker? Maybe you’ve played recreationally, as I have, perhaps using tokens, matchsticks, or chocolates for the ‘stake’? Maybe you’re a more serious poker player, with higher level stakes? Or maybe you’ve never played the game at all… this blog post isn’t about the rights or wrongs of playing cards… but whatever … Continue reading ‘Why Additional Needs Parenting Is Like A Poker Game’
Oh my days, that’s quite a blog post title isn’t it? All sorts of controversial topics wrapped up in there too… but it represents a compact summary of a bunch of things that have collided in the news, and in my mind, over the past few days. Things that have in turn outraged, angered and … Continue reading Children with Additional Needs, Autism ‘Cures’, and Abortion Advice
James has an infectious laugh; it is one of those laughs that can start as a chuckle, a little giggle, and then builds and builds into a raucous belly laugh that barely gives him opportunity to take breath. All sorts of things can set him off; maybe something he’s watching on his iPad, once he … Continue reading ‘How The Sound Of Our Autistic Son’s Laughter Helps Us Dance!’