Throughout the childhood and adolescence of any child there are many different kinds of milestones, transitions and rites of passage, many changes that come along, but for families of children with additional needs these can provide many opportunities for unhealthy comparison and a realisation of difference, which can sometimes be so difficult and painful.Milestones might … Continue reading Don’t “Go Compare!” – Milestones, Transitions And Rites Of Passage For Children With Additional Needs
Every now and then I read something that lifts my soul for the rest of the day, sometimes even for the rest of the week! Yesterday was one of those days…I was looking on the BBC website and saw the story of a mum, Natalie, and her young autistic son, Rudy, who also has a … Continue reading Be Like Ian – Choose Kindness
As lockdown restrictions gradually ease, in line with Government guidance, churches across all four nations of the United Kingdom are beginning to put serious thought into what this means for the opening of church buildings and the resumption of in-building activity, including children’s and youth work.Over the past year, some children’s and youth work has … Continue reading Ohana Means Family. Family Means No One Gets Left Behind Or Forgotten.
James is in his late teens, is autistic, has learning difficulties, epilepsy and anxiety, and so he came in towards the bottom end of category ‘six’ in the Government’s COVID-19 vaccination first phase priority groups: Adults aged 16 to 65 years in an at-risk group.Last week it was James’ turn to have his first COVID-19 vaccination. … Continue reading COVID-19 Jabs And Young People With Additional Needs
Research from the Disabled Children’s Partnership exposes that most disabled children still cannot access life-changing health appointments and vital therapies as a result of lockdown. This cannot go on, and there are calls for a COVID-19 recovery plan for disabled children. Disabled children deserve better. The Disabled Children’s Partnership research exposes a huge gap in … Continue reading The Longest Lockdown – A Report From The Disabled Children’s Partnership
We will soon be at the anniversary of the beginning of the first COVID-19 lockdown, which began with Boris Johnson’s address to the nation on the 23rd March 2020. A year on, and still in the third lockdown, every day seems the same; many of us are feeling a weariness, an overwhelming sense of exhaustion. It … Continue reading Are You Feeling Exhausted?
Possibly like no generations before, our children have grown up with their whole lives being captured on camera. Whatever our views on social media, many of our children have had their lives broadcast to the world as every achievement, milestone or event has been posted on Facebook, Twitter, Instagram or a hundred other platforms.As parents … Continue reading What Is Your Favourite Photo Of Your Additional Needs Child?
These times we are living in are hard, aren’t they? Living through the last 12-months has sometimes seemed like a never ending ‘Groundhog Day’, and the current lockdown has seemed harder that previously due to fatigue and the weather not being so good.It seems so dark, and I don’t just mean the still short days … Continue reading Looking For Light In The Darkness
James, my autistic son, gets cold feet. Sometimes this is because he often prefers to go barefoot, sometimes this is because his blood circulation isn’t as good as it might be, or maybe it’s a combination of the two. He likes to have his feet rubbed, to warm them up, but he has also enjoyed … Continue reading Washing My Autistic Sons’ Feet
The third International Day of Education (January 24) will be marked on Monday 25 January 2021 under the theme 'Recover and Revitalize Education for the COVID-19 Generation'. This day, celebrated globally, shines a light on the need to create and sustain educational opportunities for every child, and for these opportunities to be lifelong.When it adopted the … Continue reading The International Day of Education In A Global Pandemic