Everybody knows about Epilepsy, don’t they? Almost all of us have at some point seen someone collapse to the ground and start uncontrollably shaking and becoming unresponsive. Having a fit. Isn’t that what Epilepsy is all about? Surely, you’re born with it, so it’s something you, and your family get used to don’t you? Well, … Continue reading Epilepsy? We All Know About That, Don’t We?
The advertising and marketing around Halloween seems to ramp up to greater and greater heights every year, with major supermarkets dedicating whole isles, sometimes several of them, to their Halloween merchandise, even during the crisis that we are all enduring. Advertising supports this with lots of TV adverts featuring ghosts, ghouls, pumpkins and spiders’ webs. … Continue reading Happy ‘Alternative’ Halloween For Children With Special Needs
‘Hygge’ is a Danish and Norwegian word for a mood of coziness and comfortable conviviality with feelings of wellness and contentment. With a recent study showing that people living in the arctic circle are armed with a mindset linked to this that helps combat the long ‘polar night’, a bit of ‘hygge’ might come in … Continue reading What Can Special Needs Parents Learn From Scandinavian ‘Hygge’
It’s been over six-months since lockdown started, and although for some there is the beginning of a return to some kind of normality, schools going back, offices opening up, for others lockdown continues like some never-ending groundhog day. With the pandemic seemingly entering 'Phase 2' now, things look like they could get harder again.Even for … Continue reading Lost In Lockdown: Left Behind
It's over six months in since the start of lockdown and some churches are beginning to open back up for in-building services again, exploring ways to meet the Government guidelines for gatherings of no more than 30 people, or is it six, or is it 3.14159. It’s difficult, the rules keep changing and most churches … Continue reading Beyond Zoom: Supporting Additional Needs Families
It had been coming for six long months, since school closed due to the Coronavirus lockdown back in March. Back then, James was on a gradual build-up of his time in school, slowly getting back to where he had been before epilepsy, and the associated anxiety that came with it entered his world. You see, … Continue reading The Day Finally Came, But Who Would Be The Anxious One?
Parents of children with additional/special needs and disabilities are often labelled negatively; ‘troublemakers’, ‘confrontational’, ‘needy’, ‘over-sharing’. I’ve seen parents blamed for their child’s disability. I’ve seen parents told that they have no right to speak on behalf of, or share details about, their child. I’ve seen parents told that they are wrong to feel or … Continue reading Special Needs Parents Are Candles, Burning Between Hope And Despair
Let me give you a little glimpse into how my mind works sometimes…. My family and I were watching Ben Fogle, his ‘New Lives In The Wild’ show on Channel 5, have you seen it? It’s about people who have given up the rat-race and gone to live a life in the wild places; it’s … Continue reading ‘The Dads Fire Circle’, A Place For Additional Needs Dads To Gather
A guest blog post by Cris Gangemi, Director of The Kairos Forum: As the director of the Kairos Forum, a small independent consultancy working in the field of church, access and disability, I have been truly amazed to be a witness to the unfolding of a very practical theology. Before I ran the Forum, I was … Continue reading The Kairos Forum: Bringing The Voice Of Creative Ministry Into The Church
A guest blog post by Kayte Potter from The National Parenting Initiative: I wonder who makes up your household? Perhaps there are lots of you, perhaps just a few. Maybe it’s noisy and difficult to hear yourself think, or maybe it’s quiet and small. Perhaps your house is full of medical equipment and activity charts … Continue reading The National Parenting Initiative: Welcome, Inclusion, And Community