12 Days Of Additional Needs Christmas

Traditionally, the twelve days of Christmas start on Christmas Day and run on until January 6th which is ‘Epiphany’ or ‘Three Kings’ Day, the day that marks the arrival of the three wise men in the nativity story. It’s also usually the day when all the Christmas decorations come down.I thought it would be fun to … Continue reading 12 Days Of Additional Needs Christmas

So Here It Is, ‘Merry Christmas’ Everybody’s Having Fun?

This time of year, it’s hard to escape from the deluge of Christmas tunes; whether it’s on the radio, in shops, in TV adverts, the same old songs are everywhere. Probably the most recognisable is that 1970’s classic from Slade, ‘Merry Xmas Everybody’…Hearing it again for the millionth time today, the chorus of the song broke … Continue reading So Here It Is, ‘Merry Christmas’ Everybody’s Having Fun?

Back To School? Essential Services Restarting? How Has That Been Going For Disabled Children…

Through my role at Urban Saints I am proud to be part of the Disabled Children’s Partnership (DCP), a coalition of more than 80 organisations campaigning for better support for disabled children and their families.  Earlier in 2020 the DCP published an influential 'Left In Lockdown' report on the impact of lockdown on disabled children and … Continue reading Back To School? Essential Services Restarting? How Has That Been Going For Disabled Children…

Epilepsy? We All Know About That, Don’t We?

Everybody knows about Epilepsy, don’t they? Almost all of us have at some point seen someone collapse to the ground and start uncontrollably shaking and becoming unresponsive. Having a fit. Isn’t that what Epilepsy is all about? Surely, you’re born with it, so it’s something you, and your family get used to don’t you? Well, … Continue reading Epilepsy? We All Know About That, Don’t We?

Happy ‘Alternative’ Halloween For Children With Special Needs

The advertising and marketing around Halloween seems to ramp up to greater and greater heights every year, with major supermarkets dedicating whole isles, sometimes several of them, to their Halloween merchandise, even during the crisis that we are all enduring. Advertising supports this with lots of TV adverts featuring ghosts, ghouls, pumpkins and spiders’ webs. … Continue reading Happy ‘Alternative’ Halloween For Children With Special Needs

What Can Special Needs Parents Learn From Scandinavian ‘Hygge’

‘Hygge’ is a Danish and Norwegian word for a mood of coziness and comfortable conviviality with feelings of wellness and contentment. With a recent study showing that people living in the arctic circle are armed with a mindset linked to this that helps combat the long ‘polar night’, a bit of ‘hygge’ might come in … Continue reading What Can Special Needs Parents Learn From Scandinavian ‘Hygge’

Lost In Lockdown: Left Behind

It’s been over six-months since lockdown started, and although for some there is the beginning of a return to some kind of normality, schools going back, offices opening up, for others lockdown continues like some never-ending groundhog day. With the pandemic seemingly entering 'Phase 2' now, things look like they could get harder again.Even for … Continue reading Lost In Lockdown: Left Behind

Beyond Zoom: Supporting Additional Needs Families

It's over six months in since the start of lockdown and some churches are beginning to open back up for in-building services again, exploring ways to meet the Government guidelines for gatherings of no more than 30 people, or is it six, or is it 3.14159. It’s difficult, the rules keep changing and most churches … Continue reading Beyond Zoom: Supporting Additional Needs Families

The Day Finally Came, But Who Would Be The Anxious One?

It had been coming for six long months, since school closed due to the Coronavirus lockdown back in March. Back then, James was on a gradual build-up of his time in school, slowly getting back to where he had been before epilepsy, and the associated anxiety that came with it entered his world. You see, … Continue reading The Day Finally Came, But Who Would Be The Anxious One?

Special Needs Parents Are Candles, Burning Between Hope And Despair

Parents of children with additional/special needs and disabilities are often labelled negatively; ‘troublemakers’, ‘confrontational’, ‘needy’, ‘over-sharing’. I’ve seen parents blamed for their child’s disability. I’ve seen parents told that they have no right to speak on behalf of, or share details about, their child. I’ve seen parents told that they are wrong to feel or … Continue reading Special Needs Parents Are Candles, Burning Between Hope And Despair