We were closing in on the agreed beginning of the Brexit transition period, due to have commenced on 29th March 2019, but with Parliament gridlocked we've now agreed an extension to 31st October 2019; Halloween. The departure as PM of the architect of the 'Withdrawal Agreement', Theresa May, and the impending leadership election for her … Continue reading Disability And Brexit – What Could Happen With A ‘No Deal’ Brexit
Category: Parents/Carers
These blog posts could be interesting for anyone, but especially if you are a parent/carer of a child or young person with additional needs or a disability.
Autism, Epilepsy, And The One-In-Three Chance Of Both
Epilepsy Awareness Day, or ‘Purple Day’, is on the 26th March, and this will be the first ‘Purple Day’ since James, our 15-year-old son, added Epilepsy to his growing list of conditions that already included Autism and Learning Disability… It’s been quite a year, quite a journey, as we’ve rapidly learned about a condition that … Continue reading Autism, Epilepsy, And The One-In-Three Chance Of Both
Why Additional Needs Parenting Is Like A Poker Game
Have you ever played poker? Maybe you’ve played recreationally, as I have, perhaps using tokens, matchsticks, or chocolates for the ‘stake’? Maybe you’re a more serious poker player, with higher level stakes? Or maybe you’ve never played the game at all… this blog post isn’t about the rights or wrongs of playing cards… but whatever … Continue reading Why Additional Needs Parenting Is Like A Poker Game
Children With Additional Needs, Autism Cures, And Abortion Advice
Oh my days, that’s quite a blog post title isn’t it? All sorts of controversial topics wrapped up in there too… but it represents a compact summary of a bunch of things that have collided in the news, and in my mind, over the past few days. Things that have in turn outraged, angered and … Continue reading Children With Additional Needs, Autism Cures, And Abortion Advice
How The Sound Of Our Autistic Son’s Laughter Helps Us Dance!
James has an infectious laugh; it is one of those laughs that can start as a chuckle, a little giggle, and then builds and builds into a raucous belly laugh that barely gives him opportunity to take breath. All sorts of things can set him off; maybe something he’s watching on his iPad, once he … Continue reading How The Sound Of Our Autistic Son’s Laughter Helps Us Dance!
Why All The Lights Are On In Our House
James has a new obsession… It started at Christmas and has continued into the New Year… It was probably triggered by all of the bright shining lights that he so enjoyed seeing on the Christmas tree, around the fireplace, on the outside of the house, on the large bush we have outside our front door… … Continue reading Why All The Lights Are On In Our House
Because He’s Worth It!
Perhaps never before has humanity lived in such a self-centred, self-obsessed, self-serving, narcissistic, selfish society as we do now. Advertising and marketing media is filled with slogans such as ‘Because you’re worth it!’, ‘It’s all about you!’, and recently that dreadful advert from TUI (formerly Thomson Holidays), where an entourage of lackeys serve the every … Continue reading Because He’s Worth It!
… And A Happy New Year?
Christmas has come and gone, with all of its celebration, joys, and maybe some trials and tribulations thrown in for good measure… Racing up next we say goodbye to the old year and cheer in the new; but how that makes you feel might well depend on the kind of year you’ve had, and any … Continue reading … And A Happy New Year?
Treasure In The Darkness
‘Return of the Night Drives!!’ No, not a new film, but a recommencing of night time nocturnal adventures with James, the first for a few weeks! We were out earlier this week for well over an hour, having a wonderful time exploring the local area in the dark, visiting the airport, finding other places where … Continue reading Treasure In The Darkness
Don’t Worry: God’s Peace In The Storm
There have been a few times lately when I’ve felt that God has been pulling me up by the bootstraps and telling me that he has everything under control, and that worrying about things isn’t actually a productive or helpful use of my time or energy… That hasn’t always been an easy message to receive, … Continue reading Don’t Worry: God’s Peace In The Storm

