As Noddy Holder of ‘Slade’ yells at us from about the middle of September every year… “It’s Chriiisssttt-mmmaaaaasssss!!!” You either started wearing your Christmas jumper in October, had your decorations up in November and have already watched ‘Elf’ 12 times this season, or like many parents of children with additional needs, you feel like King … Continue reading Seven Ways To Survive Christmas With Our Own ‘Edgar the Dragons’
In FLOAT, a father discovers that his son is different from other kids in the most unusual way. To keep them both safe from judgement, Dad covers him and keeps him out of sight— but when his son’s ability becomes public, Dad must decide whether to run and hide or to accept his son as … Continue reading Why Disney Pixar’s New Animated Short ‘Float’ Is About Autism
By now there is a good chance that you will already have seen the John Lewis/Waitrose Christmas 2019 advert, featuring the adorable Edgar the dragon who struggles to fit in, as well as his friend Ava. I don’t know about you, but as I watched it for the first time, through the tears, it reminded … Continue reading Why Children With Additional Needs Are Like Edgar The Dragon
“In many ways it was an ordinary day like any other, but it turned into the most extraordinary, transforming, wonderful day of my life. A day I will never forget, a day filled with friendship, faith and an amazing encounter; a day where my life was changed forever. Many years ago, when I was a … Continue reading They Carried Me There, But I Walked Home!
Every parent wants their child to have friends, good friends that like them and care for them, friends that they can trust and build healthy relationships with. But what about when our child is disabled, different or diverse? A mother from Neptune Beach Florida, USA, spoke about the overwhelming response she has received after Tweeting … Continue reading Would Someone Be Friends With My Autistic Boy?
The heartbreaking abuse of many Autistic children, and children with Intellectual (Learning) Disability or other additional needs, is happening in the mental health system every day. It is one of the greatest fears of every parent that a change of circumstances could see any one of our children suddenly entering this system. Miriam speaks eloquently and passionately for us all… I join her in refusing to accept this abuse of our children and in continuing to campaign for this torture to end…
There are some blogs that tear me apart to write. This is one of them.
Today a government report was published with the title “The detention of young people with learning disabilities and/or autism.” You can read the report in full here: https://publications.parliament.uk/pa/jt201920/jtselect/jtrights/121/121.pdf
I read about it in the press today and cried. My own child has autism and learning disabilities. He’s non verbal, epileptic and he is doubly incontinent. I am not ashamed or embarrassed to say that at times his care needs are extreme and I struggle. Reading the introduction Members of Parliament wrote to their own report was like reading a diary and a glimpse into a future that could so easily happen to my family. Could this be your story?
“Too often the pathway to detention is predictable. It begins from before diagnosis. A family grows worried about their child. They raise concerns with the…
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In Mark’s Gospel we meet a boy who is described as having an evil spirit. Reading the account, it is possible that this boy had Epilepsy, and perhaps other additional needs too. So often we read the stories of the encounters that Jesus had with people through the words of first or second hand witnesses to … Continue reading Jesus Heals A Boy With Epilepsy: The Story From The Boy’s Perspective