Who Would Have Believed This? What A Difference A Year Makes!

It’s been quite a year!  As we sat around the meeting table yesterday for yet another ‘Child In Need’ review meeting, it was almost impossible to believe the progress that James has made in the past 12 months.  Stories flowed from social worker’s, school staff, CAMHS team members… all thrilled at how things had changed… … Continue reading Who Would Have Believed This? What A Difference A Year Makes!

Our Awesome, Amazing, Actually Autistic Boy!

For parents of children with special/additional needs there is often so much negativity, so much that is hard, so much that makes us want to curl up in a ball and cry.  Two years ago, James had his first recorded epileptic event, adding a new chapter to his journey that already included chapters called ‘Autism’ … Continue reading Our Awesome, Amazing, Actually Autistic Boy!

A Child Asks, “Did God Make Me With Autism?”

This question was recently asked by an eight-year-old autistic boy to his parents; it's a hard question to answer and the response that follows may not fit well with everyone, but then we are a diverse people so that is to be expected; so, here we go! Made in God’s image? Maybe a good starting … Continue reading A Child Asks, “Did God Make Me With Autism?”

What The Woman Healed Of Bleeding Teaches Us About Jesus

There are 37 miracles of Jesus mentioned in the Gospels, and two-thirds of these involved him healing someone.  John’s Gospel tells us that what is written only represents a fraction of what Jesus did during his three-year ministry, so in reality there are likely to have been many, many more miraculous healings than this. Sometimes … Continue reading What The Woman Healed Of Bleeding Teaches Us About Jesus

Are You Being Silenced As A Special Needs Parent?

I don’t know about you, but I passionately believe in free speech.  I strongly feel that it is one of our most important rights, and it is one that I would willingly go to the barricades to defend, but when does discussion, debate, and even downright argument spill over into something much more sinister?  And … Continue reading Are You Being Silenced As A Special Needs Parent?

Is My Child’s Identity Defined By His Disability?

What defines us?  Where is our identity to be found?  Big questions, and for each person the answer is likely to be different.  What about our children, what defines them and is the key identifier in their life?  As parents we might have different ideas about this too, especially if our children have additional needs … Continue reading Is My Child’s Identity Defined By His Disability?

Who Will Fight For The Rights Of Less Able Autistics Like My Son?

Miriam’s son is very much a younger version of my son, James. When I read what Miriam has written here, she speaks for my son too. I stand with her in defending the rights of our children, and many more like them. People are often very quick to stand up for themselves, let’s all be willing to stand up for those for whom that is not possible.

miriamgwynne's avatarfaithmummy

This week the autistic community achieved something quite incredible. News began spreading earlier this week that a large government body had changed the wording on their site that said that anyone diagnosed autistic was now forced to inform the driving and vehicle licensing agency about their diagnosis potentially risking their driver’s licence.

The autistic community responded to this and rallied together defending their rights incredible well. They tweeted MP’s who battled for them, they started petitions and shared them everywhere, they made sure the leading charities supported them and they even looked into the law on the matter. As the wife of an autistic man who drives daily, and who I even taught to drive, I found it heartening and wonderful to watch a community come together and demand action. Days later the wording was changed back to its original wording that means autistic drivers, like those with any other…

View original post 744 more words

Accessible? Inclusive? Belonging For All? What About You?

Around 20% of children and young people have long-term additional needs or disabilities of some kind. That’s about 2.5 million in the UK alone. Many of them, and their families, feel excluded from a wide range of social activities, so how can we reach out to, and meet, the needs of these children and their … Continue reading Accessible? Inclusive? Belonging For All? What About You?

“It’s Not Your Fault…” A Letter To The Mother Of Our Special Needs Child

To the mother of our special needs child, my wife… It’s not your fault…  It’s not your fault that our child is Autistic.  It’s not your fault that he has Learning Difficulties and struggles to communicate effectively.  It’s not your fault that James has Epilepsy.  None of these things are your fault, or mine; they … Continue reading “It’s Not Your Fault…” A Letter To The Mother Of Our Special Needs Child

Seeking The Truth About ‘Hidden’ Disabilities

Hidden:  (adjective) kept out of sight; concealed.  (verb) past of ‘hide’ We frequently encounter the term ‘hidden disabilities’; it is in widespread use across the media, throughout society, within many of the various disability communities.  In general, most people have a view on what they think it means; they will refer to it as relating to disabilities … Continue reading Seeking The Truth About ‘Hidden’ Disabilities